Description
Event ID: 125992
Date: 21/08/2014
Please take a photo of sonia’s son with his principal and other students 🙂
. I am organising a Trivia Night for my 9 year old son who has an inoperable brain tumour .The headmaster at his school Selby Primary School is donating the hall for the evening and a lot of local businesses have donated prizes. We would be so grateful if the paper could perhaps do a story on my son to promote the evening and his condition. Tjitjin has a condition called Neurofibromatosis , it is a condition that makes tumours on your nerves throughout your body and affects 1 in 2500 kids , my sons is in the chiasm in his brain , ( kind of like grand central station) it is wrapping around his optic nerves and causing him to go blind . He is a fantastic little boy who keeps so positive it amazes me . We are raising money to take him to a doctor in Jakarta in Indonesia who is famous for helping people with tumours .